🎗 Looking 👀 back at the last 12 months, it's is with great certainty we can to say that we have been constantly embraced by Faith, Hope and Love. Thank you to everyone for their relentless ❤️ In her post surgery/end of treatment check up, Sofia was asked to repeat out loud "I am a perfectly healthy girl" We are blessed with many 🙏 answered and prepare our hearts for Christmas 🌟

🎗 Giving thanks to God for many prayers 🙏 answered. Sofias port removal went smoothly 🙌🏻. This dual port has made accessing her for treatment invaluable. We are very appreciative as she takes another positive 👣forward.

🎗 The MRI came back good. We are moving forward with surgery to remove her port on December 13th. You are a survivor Sofia❣️ We celebrated by getting her ears repearced, her holes closed each time she went for a MRI. 👣 by 👣 life is getting back to normal 😃 #likeawarrior #likeachampion #morethan4
#ewingsarcoma #survivor

🎗 Monday morning ❄️ ☔️ brought us to the 🏩 for the end of treatment progress scans. It's very surreal and somber feeling each time we pass through those doors 🚪 labeled nuclear medicine followed by the 💉 of radioactive drug for the pet scan. Thank God we were blessed to hear that the Pet and CT scan came back " no evidence for recurrent disease. " 🎉🎊🙌🏻. The MRI results were not ready when we had our check up consultation. We will call ☎️ in tomorrow, when they tell us th MRI well we will be confirming her surgery to remove her port on December 14th 👏🏻

🎗 As childhood cancer awearness week comes to a close, I share with you Sofia's instagram post. This is a photo of one of her 31 radiation sessions at MSKCC. She is an inspiration everyday! Quiet and strong getting stronger everyday. #childhoodcancerawearnessweek #morethan4 #likeawarrior #likeachampion #newyork #pediatriccancer #ewingssarcoma

🎗 Will, Claire and Molly ( Charlie 🐶 too ) Mantrop sending Congratulations and a message to Sofia: "You are such an inspiration and are number one in our hearts!"

🎗 Today Sofia was able to squeeze in a quick 🐴 ride. It was an opportunity to introduce Calvin 🐶 to Cherry B 🐴This may be the first time since we brought Calvin home that he did not think he was the boss 😉 This week we continue to focus on recovery and we are looking towards the future 🌈

🎗 Thanking God for his mercy and blessings for our family and friends. We have many opportunities to thank him everyday but this year we are humbled by his healing of Sofia.

🎗Thank you Galen for sending some ❤️ from Dylan, Sofia's first 🐴💞 Her blood counts were fantastic today🎉 IWe appreciate these blessings and 👀 forward to each stronger 💪 day.

🎗 Celebrated 🎉 last chemo night with friends. Rita, Chris and Michael you are more like family! Over this past year, our countless last min calls ☎️ to you hoping for a ride 🚕 a visit 👩‍❤️‍👩 an adventure 🎬 or a treat 🍡was always met. Rita 😍 is the only person to stay at the hospital 🏩 the one time I left Sofia to go home for a few hours. She didn't hesitate to come to our hotel room the nights of aggressive chemos to help us. Their gift of the superhero cape may never be worn by Sofia but was no doubt earned and can be deservingly worn by them as well.

🎗One day on Kendel Jenners instagram she posted this horse 🐴 back riding on the beach 🏝 from Turks and Caicos. I saw Liv post a comment " Us one day" I took a screen shot because I know they will Someday 🐠🦀🌴
​There is a quote that says when someone has cancer your family & everyone who loves 💗 them does. Liv has suffered and been by Sofia side thru this all, they have grown together from this. Their friendship is something to cherish for a lifetime. Its time for them to go celebrate 🎉 love you lots Luv❣️

🎗 No mo Chemo 🙌🏻 Sofia's treatment protocol is done! 👍🏻Now we have to pass through this last neutropenia period then it's all down hill 👌🏻 We are so incredibly proud of our 🏆 champion 🏅 Sofia❣️ #likeawarrior #likeachampion Thank you to our home infusion nurse, Cynthia

🎗 Sarah will be one of the first in line to celebrate this all coming to an end. We know you feel crummy from chemo this week but it's almost in your past. Your a super star 💫

🎗 Who knew 🤔 when this angel 😇 from Italy 🇮🇹 came to stay with our crazy family the blessing we were receiving that summer. One of our favorite memories was us saying "sing 🎤 for us Martz" and joining her around the piano as she spread her joy. She loves deeply and has become a loyal friend who continues to shares her gift of music with us.
❌⭕️❌⭕️

🎗 The Federici family are big fans of Sofia! Can you believe 3 more chemos?
So fantastic to be on this count down to freedom day by day 👣by 👣 you rock it Sofia 💋

🎗 Frankie and Gigi can't keep calm for Sofia's last week of chemo❣️❣️❣️❣️ Either can we 😃 ✅ the last day we go to 🏩 to be accessed thru her port for chemo. We 🙏 pray for everyone out there who has to take on this fight for the strength, grace, courage and positivity that Sofia has restlessly exhibited. The blessed mother had been our constant comfort in this journey. Please 🙏a Hail Mary each day this week in appreciation for her intercession on behalf of Sofia. Enjoy this week 🍁🍂

🎗 During the first chemo we promised Sofia "at the end of this , you can have a puppy" 🐶 Well ITS THE END !!!! Last week of chemo baby, so promises kept with that we welcome Calvin with nothing but 💞 We figure after a year of fierce meds 💊 that cured the cancer It's time for the best medicine to heal the soul...., puppy ❤️

🎗Friday night Sarah and dad enjoyed a night out dancing at the Greenwhich Catholic Schools father daughter dance. Miss Fendi had no idea that this was the last night she would be the only Petrafesa puppy 🐶.

🎗 Wishing our family in Italy was closer to share in our excitement to end these last chemo rounds. ❌⭕️❌⭕️ Nonna, Zia Ana, Zio Gianni, Silvano, our treasures. Happy Veterans Day 🇺🇸

🎗William Marchetti couldn't wait for the rest of his family he made his own poster for Sofia❣️This week Sofia continues to take it low key.

🎗 Hope 💖, Jack, and George Smith congratulate Sofia on her strength 💪 thru this fight.

🎗 This round is tough on Sofia, she is very tired and the nausea meds are making her exceptionally drowsy. Since the chemo is cumulative and she started with low numbers it's not a complete surprise Friend.Tammy and Morgan sending their encouragement and contagious smiles to their favorite warrior.

🎗 Sofia is blessed with old friends who share their 💗
❌⭕️❌⭕️ back at you Zoe❣️

🎗 Back at the Hospital for day one of round 13. It was a reminder of how bad the traffic can be. We were relived that her counts squeaked by after a brief moment we thought counts weren't high enough to start. Can't 🚦stop her!
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